Sorry been a while :)

So I realise that it's been almost forever since I've posted anything on here and I apologise.
To be honest it was mainly because my page got all screwed up and I didn't know how to fix it. Anwyways we've been doing fine for like the last year or so :) Baylee is now off of her steroids! I no longer have to give her shots. SO nice! And Dr. Filloux said that she is doing so well that we'll probably only need to do her monthly IVIG infusions for another 6 months! There is an end in sight, which is so nice :) After that we'll just be going down for bi-annual MRIs. It's such a blessing that Baylee has been and still is doing so amazingly well. She's still pretty hyper, and she still has tantrums, but those things are manageable. She seems to be mellowing out a bit since she's been off of her steroids though. We enrolled her in preschool again at BYU I this semester and they haven't had very many problems with her. Last semester she would have a tantrum or something to that effect on a daily basis and sofar this semester it's only happened 1-2 times. We did just recently get a service coordinator to help us figure out what would be best for Baylee as far as behavioral/developmental therapy goes. She is working on scheduling a psychiatric evaluation for Baylee and we'll see how much help she needs. I was trying to figure that out on my own for a while, and ended up going pretty far over my cell phone minutes so it's nice to have someone to help me out. I don't know how much help she'll need, but we just want to make sure that she gets as much behavioral help as possible before going into kindergarden. Overall though it seems like Baylee should be able to lead a relatively normal life, which is such a blessing. We'll see how things go, but we're pretty optimistic at this point. We are very grateful for all of the prayers that have been said in Baylee's behalf. We know that her speedy progress has been a direct result of those prayers, so thank you all so much.