We left at 11:00 last night after HD got home from work for Utah, because the only time they could do Baylee's MRI was this morning at 6:30. It was a long and FOGGY drive! It was hard to see much of anything which was pretty unnerving, and then there were areas with fog and snow, which HD and I got pretty nervous about. We did make it down though with time to spare (3:30 AM) so we hung out in the parking garage at Primary Childrens for about an hour watching Monster's Inc. on our portable DVD player, and then decided to go inside and fall asleep in their pull-out chairs on the 3rd floor for an hour or so until it got closer to her appointment.
The MRI went well. We won't know the results until Monday and Tuesday when we go in for Baylee's IVIG treatment and to talk with her doctors about her progress, but she didn't wake up this time thanks to Grandma Kay, who researched anestesia treatments on omsusa.org for us, and discovered that kids with OMS actaully can't be put under very easily. We were wondering why she kept waking up during all of her scans... :) Good to know! Apparently she needed to have general anestesia for the MRI, which can't be done in Rexburg or Idaho Falls (I checked), becasue they don't have the equipment for it. That is why we had to drive down last night.
Dr. Pranzitelli (the specialist from Illinois) has researched this and found that the only drug that really works for OMS patients as an anastetic is propofol. So that's what they used this time and she didn't wake up, and after the MRI, she wasn't throwing HUGE temper tantrums! It was wonderful.
After our morning at the hospital we drove back down to Kristin and Will's. Laycee has been staying down here for the last week and 1/2 and we have been missing her DREADFULLY! When we walked in Laycee and Baylee were both so excited! They were giving each other so many hugs and kisses! It was adorable :) Then I set them both down on to play (Baylee can sit up by herself now!) and they were rolling balls back and forth to each other. I am SSSSOOO happy to have both my girls again! It was a good idea for Laycee to be here because it made it possible for me to get a TON of paperwork and phone calls done for Baylee, but it was definilty not easy!
2 comments:
Thank heavens for modern medicine. I'm glad your babies are back together!
That is great Kay could help the doctors understand how to help Bay! I bet the girls were thrilled to see each other. :)
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