Monday, January 4, 2010

ACTH progress

Yesterday Kay recieved another (of many) e mails from the Senior VP of Blue Cross of Idaho stating that there is another form of ACTH called Cosyntropin, which is essentially the same thing but it's synthetic. They create it in labs, but it has the same molecular structure of ACTH, and is a lot less expensive. Apparently it is what they use in Japan, and according to the Neurologists there, it works very well. Our insurance will cover that for Baylee, so hopefully it will work. Right now our neurologist, Dr. Filloux, is trying to work out the kinks of dosage size, because apparently it is more dilluted than ACTH, but is an intermuscular injection that she'll need to have twice a day for the first week and then once a day after that, and because of the dillution she'll need one shot in each thigh twice a day, so he's trying to see if we can get it in a more concentrated form. We're going back up to Primary Childrens tomorrow to see what he came up with. We're hoping that Baylee won't have to have 4 shots a day, but honestly at this point if it will help her to recover, we'll do whatever is necessary. So hopefully we'll be coming back to Rexburg tomorrow, but we'll have to see how it goes.

3 comments:

Kay said...

I think you mean Cortrosyn. Cosythropin is the one they would have to give introvienously. And we really don't want to go through all that again. :)

Trish Griffee said...

I hope they get it all figured out soon. The sooner that kiddo gets back to some sense of normalcy the better. you are still in our prayers.

nathan said...

Who's the physical therapist? Just curious! Good luck.